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How does 3B-NEO address ethical concerns about newborn genomic testing?

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Claire
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  • 3billion requires mothers and guardians to complete a thorough informed consent process before ordering the test. Healthcare professionals should provide caregivers with sufficient explanation regarding the purpose of the test, the scope of analysis, its limitations, and data management policies. 3billion proceeds with analysis only for specimens with confirmed written consent, and respects the guardian’s right to autonomous decision-making.
  • Reporting focused on medical actionability:Information that could create unnecessary prejudice or anxiety about the child’s future is strictly excluded. Rather than reporting adult-onset conditions or disorders for which no effective treatment currently exists, 3B-NEO focuses only on conditions for which immediate medical intervention and preventive management are available at present. This approach minimizes the ethical concerns associated with genomic screening while protecting the child’s practical right to health.
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